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Talking about:
3 posts
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Fibromyalgia :: One name I wouldn't wish on a enemy.

kiska1 started this conversation
Jun 25, 2008

I came to Aid-page. I like others are desperate , confused, and frightened. I am American. 4 years ago Independent and hopeful.

I lost everything because of an illness that wasn't taken seriously. So early diagnoses and the right Medications weren't given.

My body laked ability and function and I no longer was valued at my Job. I was fired. They call what I have Fibromyalgia. A big

name for a Illness and to some a Desies.,  But the one who suffers with it, its seen by the Medical Field and the Health Care system and sadly healthy  People as a made up

excuse for Medications, to no longer want daily responsibilities, and complainer. In the 4 years of seeking my help It was also

mandatory Psychiatry visits. One with many negative Tests of all kinds? Yets still complained must be nuts. Daily I was a walking

Pill in pain. I am now no different. I still suffer. I have no Magic Words to make them believe me, to help me. I' a Women of 47

continue to be denied help for an Illness I didn't ask for. Who at one long time ago had hopes and dreams as any Human being wants.

Today are figments. To beg People of power I willingly,, happily Voted for! Only to be ignored now, and sadly,, sadly waite

permission's of strangers to allow me disability money that rightfully belongs to me. Yet the Magic word I do not know? To them

I seem a complainer a Drug addict, or to no longer want responsibilities. How do I get someone to see, believe all I want is help I

rightfully deserve as an American. Why does my Government,, my State denie me the same wants and needs they freely have.

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kiska1
Jun 30, 2008
 in response to ekikaseven...   

WOW ** There is life on this Site after all. lol.

Thank you ekikaseven's for takeing the time to reply to me* It means a lot. I don't exspect real help hear but wouldn't turn it away if I was lucky to get it.. I also need advice,, good, real advice from someone who could help me,, help me. Wishful thinking,, after 2 1/2 years of being pushed down the Ladder and squished into Cracks after I was fired from my Job.. Getting tierd of hearing "" Hears a number to a Supprt Group they can help you get your needs met"" The only one who actualy didn't pass me on as someone's else proplem was the Food Basket I go to once a Month for a bag of Food. I hope your weekend was a good one** BIG HUG kiska,,

reply to kiska1
ekikaseven
Jun 25, 2008

How well do I understand, how well, how well.  I am a female, same disease, etc, we just have different names.  I can definitely relate.  It is a terrible disease to have.  You are right when you speak about the monies that belong to us -we have to ask for. And, guess what, they deny us!  All that money that we paid into. 

I am so sorry that you have this disease.  I wouldn't wish this upon anyone.  Others don't understand what a monumental task it is somedays just to be able to walk or to get around the house.  They don't understand the stiffness & the pain.  And, don't you just love the one "its all in your head".  We wish we could put it "all in our heads" that way the pain wouldn't be "all over our body". LOL.

I will be praying for you.  If you ever need anyone to talk to just email me. 

I understand,

ekikaseven

reply to ekikaseven